This treatment is ever-changing and evolving. When there are wins, there are also losses. Tyler is due to enter his next stages of treatment in early April. But in mid-March, there was a glint of hope for a reprieve from treatment with a Disney trip. But you just never know, and Tyler did find his way back to the hospital for a couple of days.
I will not lie, this was a scary time. Spencer caught a flight to Los Angeles to meet his Aunt and Uncle and still go on this trip— he too is going through this and he along with Tyler deserves the preservation of childhood and fun. I (Olivia) drove up from San Diego and we crossed our fingers that Tyler would be able to make this trip and recover. Below is an excerpt from Katie’s Instagram, that gives some more information and the perspective of someone who was there.
Tyler woke up late Friday night with some issues and ended up being admitted for a few nights. Meanwhile, his Auntie Kehau & Uncle Jack had boarded a plane to have us all meet in LA for a trip to Disneyland. So as usual life gave us the opportunity to do shuffling of things. Spencer got on a plane yesterday and is currently living his best life. Tyler had every single test you can think of without complaining. His only request was to be discharged so he could get to the planned trip. So today we got through all the lights and they turned out green! So we will hit the road to meet everyone as planned. He was also incredibly concerned he wouldn’t be able to see his @istandwithmypack family this weekend. Huge thanks to @ucsfchildrens and all the magic they do for our sweet boy. Life is so uncertain through all of this but what I do know is when my son asks me to get into his hospital bed in the middle of the night and cuddle “a bit” nothing matters. Brace yourself Disneyland we are coming for you!
Tyler is strong, he is able to go through this journey with patience, love and the continuous desire to do better for others— especially dogs and his partnership with ISWMP.
The images show Tyler in treatment, his Aunt and Uncle flying in, and Spencer having some fun with cousins Isaiah and Wyatt.